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ANNUAL BLEEDS (AB) AND HEALTH‐RELATED QUALITY OF LIFE (HRQOL) AMONG ADULTS WITH HAEMOPHILIA A (HA) RECEIVING PROPHYLAXIS

L. Young - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

ANNUAL BLEEDS (AB) AND HEALTH‐RELATED QUALITY OF LIFE (HRQOL)AMONG ADULTS WITH HAEMOPHILIA B

L. Markson - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

ASSESSING THE BLEEDING PHENOTYPE IN NON‐SEVERE HEMOPHILIA BY USE OF THE ISTH BLEEDING ASSESSMENT TOOL (BAT)

F. R. Kloosterman - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

FVIII

AUDIT OF 14 PATIENTS RECEIVING SUSOCTOCOG ALFA UNDER THE NHS ENGLAND COMMISSIONING POLICY

L. Gray - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

Susoctocog alfa

BAY 94‐9027 PROVIDED EFFECTIVE LONG‐TERM PROPHYLAXIS IN PEDIATRIC PATIENTS AGED ≥ 12 YEARS AT THE END OF THE PROTECT VIII KIDS EXTENSION STUDY, INDICATING CONSISTENT SAFETY OF TREATMENT INTO ADOLESCENCE

S. Ahuja - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

CARE FOR PEOPLE WITH HAEMOPHILIA B: PERCEPTIONS OF SPECIALIST NURSES

D. Pollard - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

CLEARANCE OF FIDANACOGENE ELAPARVOVEC VECTOR DNA IN PATIENTS WITH SEVERE OR MODERATELY SEVERE HEMOPHILIA B

A. Chhabra - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

CLINICAL BURDEN OF INHIBITORS IN HAEMOPHILIA B – USING DATA FROM CHESS II – A EUROPEAN REAL‐WORLD DATA STUDY

L. Young - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

EFFICACY AND SAFETY OF ETRANACOGENE DEZAPARVOVEC IN ADULTS WITH SEVERE OR MODERATE‐SEVERE HEMOPHILIA B: FIRST DATA FROM THE PHASE 3 HOPE‐B GENE THERAPY TRIAL

S. W Pipe - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

ENHANCED HALF‐LIFE (EHL) VS. STANDARD HALF‐LIFE (SHL) REPLACEMENT FACTORS IN HAEMOPHILIA A AND B: APPLICATION OF A HAEMOPHILIA VALUE FRAMEWORK

M. Skinner - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

EVALUATING THE ECONOMIC BURDEN ASSOCIATED WITH PROBLEM JOINTS, ACROSS MODERATE AND SEVERE HEMOPHILIA A, IN CHILDREN AND ADULTS: CHESS PAEDIATRICS AND CHESS II

P. Chowdary - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

EXAMINATION AND VALIDATION OF A PATIENT‐CENTRIC JOINT METRIC: “PROBLEM JOINT”; EMPIRICAL EVIDENCE FROM THE CHESS II DATASET

T. Burke - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

EXIGENCY: KNOWLEDGE OF GENE THERAPY AMONG PARENTS OF CHILDREN WITH HAEMOPHILIA

S. Fletcher - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

FEIBA GLOBAL OUTCOME (FEIBA GO) STUDY: REAL‐WORLD DATA IN PATIENTS WITH CONGENITAL HEMOPHILIA AND INHIBITORS

C. Hermans - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

FOLLOW‐UP ON A NOVEL ADENO ASSOCIATED VIRUS (AAV) GENE THERAPY (FLT180A) ACHIEVING NORMAL FIX ACTIVITY LEVELS IN SEVERE HEMOPHILIA B (HB) PATIENTS (B‐AMAZE STUDY).

P. Chowdary - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

HEMOPHILIA A PATIENTS WITH PREVIOUS JOINT BLEEDS AND CONSECUTIVE ARTHROPATHY MAY BENEFIT FROM HIGHER FVIII TROUGH LEVELS: POST HOC ANALYSIS OF THE PHASE 3 PROPEL TRIAL

J. Windyga - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

Propel

IMPROVEMENT IN PAIN‐RELATED QUALITY OF LIFE IN PATIENTS WITH HAEMOPHILIA A TREATED WITH RFVIIIFC INDIVIDUALIZED PROPHYLAXIS: POST‐HOC ANALYSIS FROM A‐LONG

J. Pasi - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

FVIIIFc

INDIRECT BURDEN ASSOCIATED WITH PRODUCTIVITY LOSS IN HAEMOPHILIA A & B – USING DATA FROM CHESS II – A EUROPEAN REAL‐WORLD DATA STUDY

L. Young - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

N/A

INSIGHT INTO THE PERSISTENT CLINICAL BURDEN UNDERLYING PROBLEM JOINTS, PAIN, AND BLEEDING, IN ADULTS FROM ACROSS EUROPE WITH HAEMOPHILIA A AND B: THE CHESS II STUDY

T. Burke - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Chronic pain

FVIII

LONGER‐TERM EFFICACY AND SAFETY OF CONCIZUMAB PROPHYLAXIS IN PATIENTS WITH SEVERE HAEMOPHILIA A WITHOUT INHIBITORS: RESULTS FROM THE EXTENSION PART OF THE PHASE 2 EXPLORER5 TRIAL

H. Eichler - European Association for Haemophilia and Allied Disorders (EAHAD) , 2021

Therapeutic Area

Disease

Drug/Treatment

Blood/haematological Diseases

Hemophilia

NN7415

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