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: Characteristics and outcomes of adults with primary ciliary dyskinesia (PCD): an EMBARC/BEAT-PCD analysis

Researchers

Presenter

  • Amelia Shoemark

Principal Investigators

  • Francesco Blasi

  • Felix C Ringshausen

  • Anthony De Soyza

  • Montserrat Vendrell

  • Pieter C Goeminne

  • Wim Boersma

  • Charles S Haworth

  • Marlene Murris

  • Katerina Dimakou

  • Adam T Hill

  • Micheal L Loebinger

  • Rosario Menéndez

  • Antoni Torres

  • Tobias Welte

  • Robert Wilson

  • Stuart Elborn

  • Stefano Aliberti

  • James D Chalmers

Medical Centers

  • Doctor Josep Trueta University Hospital, Girona, Spain

  • Queen's University Belfast, Belfast, United Kingdom

  • The Royal Marsden Hospital, London, United Kingdom

  • University Hospital Gasthuisberg, Leuven, Belgium

  • “Sotiria” Chest Hospital, Athens, Greece

  • Hannover Medical School, Hannover, Germany

  • University of Newcastle, Newcastle, United Kingdom,

  • The University of Edinburgh, Edinburgh, United Kingdom

  • Hospital Universitario La Fe de Valencia, Valencia, Spain

  • Universitat de Barcelona, Barcelona, Spain

  • Hospital Universitario del Mar, Barcelona, Spain

  • University of Dundee, Dundee, United Kingdom

  • Papworth Hospital, Cambridge, United Kingdom

  • Medical School Hannover, German Center for Lung Research,, Hannover, Germany

  • Medical Center Alkmaar, Alkmaar, Netherlands

  • Hopital Larrey, CHU Toulouse, Toulouse, France

  • University of Milan, Milan, Italy

Locations

  • United Kingdom

  • Germany

  • Italy

  • Belgium

  • France

  • Netherlands

  • Greece

  • Spain

Companies

  • N/A

Study Components

Therapeutic Area

  • Pulmonary/Respiratory Diseases

  • Genetic Disorder

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Multicenteric

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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