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: International BEAT-PCD Consensus Statement for infection prevention and control in Primary Ciliary Dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient representatives

Researchers

Presenter

  • June Kehlet Marthin

Principal Investigators

  • Mieke Boon

  • Suzanne Crowley

  • Carmen Casualta

  • Damien Ms Destouches

  • Ernst Eber

  • Amparo Escribano

  • Eric Haarman

  • Claire Hogg

  • Bernard Maitre

  • Gemma Marsh

  • Vendula Martinu

  • Antonio Moreno-Galdó

  • Huda Mussaffi

  • Heymut Omran

  • Petr Pohunek

  • Bernhard Rindlisbacher

  • Phil Robinson

  • Deborah Snijders

  • Panayiotis Yiallouros

  • Wolf Walker

  • Helle Krogh Johansen

  • Kim G Nielsen

Medical Centers

  • Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark

  • Departments of Paediatrics and Paediatric Respiratory Medicine, Imperial College and Royal Brompton Hospital, London, United Kingdom

  • Schneider Children’s Medical Center of Israel, Petach-Tikva, Sackler school of medicine, Tel-Aviv, Israel

  • Paediatrics Pneumology Unit, Hospital Clínico Universitario Valencia, Valencia, Spain

  • Paediatric Pulmonology, Paediatric Department, 2nd Faculty of Medicine, Charles University and University Hospital Motol, Prague, Czech Republic, Prague, Czech Republic

  • Medical School, University of Cyprus, Nicosia, Cyprus

  • Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University of Southampton, Southampton, United Kingdom

  • Primary Ciliary Dyskinesia Centre, Dept of Women’s and Children’s Health (SDB), University of Padova, Padova, Italy

  • Department of Medical Oncology, VU University Medical Center, Amsterdam, Netherlands

  • Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital Rigshospitalet and Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark

  • Pulmonary Service, Centre constitutif Respirare, Centre Hospitalier intercommunal de Créteil, Univ Paris Est Creteil, INSERM, IMRB, F-94010 Creteil, Paris, France

  • Association des Patients Ayant une Dyskinésie Ciliaire Primitive, Paris, France

  • Department of General Paediatrics and Adolescent Medicine, University Hospital Muenster, Muenster, Germany

  • Division of Pediatric Haematology/Oncology, Dept of Pediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria

  • Department of Oncology, Copenhagen University Hospital - Rigshospitalet, Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark

  • Department of Respiratory and Sleep Medicine, Royal Children’s Hospital, Parkville, Australia, Department of Paediatrics, University of Melbourne, Parkville, Australia Murdoch Children’s Research Institute, Parkville, Australia

  • Department of Pediatrics, Vall d’Hebron Hospital Universitari, Vall d’Hebron Barcelona Hospital Campus, Universitat Autònoma de Barcelona, Spain. CIBER of Rare Diseases (CIBERER), Instituto de Salud Carlos III (ISCIII), Madrid, Madrid, Spain

  • Department of Radiology, University Hospital Gasthuisberg, Leuven, Belgium

  • Paediatric Department of Allergy and Lung Diseases, Oslo University Hospital, Norway, Oslo, Norway

  • Division of Paediatric Respiratory Medicine, University Children’s Hospital, Bern, Switzerland

  • Kartagener Syndrom und Primäre Ciliäre Dyskinesie, Steffisburg, Switzerland

Locations

  • Austria

  • Denmark

  • United Kingdom

  • Switzerland

  • Israel

  • Germany

  • Italy

  • Norway

  • Cyprus

  • Australia

  • Belgium

  • France

  • Netherlands

  • Czech Republic

  • Spain

Companies

  • N/A

Study Components

Therapeutic Area

  • Pulmonary/Respiratory Diseases

  • Genetic Disorder

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Multinational

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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