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: A Parent Reported Quality of Life Measure for Young Children with Primary Ciliary Dyskinesia: QOL-PCDPR

Researchers

Presenter

  • Laura Behan

Principal Investigators

  • Corine Driessens

  • Siobhan Carr

  • Sharon Dell

  • Amanda Harris

  • Rebecca Knibb

  • Margaret Leigh

  • Manjith Narayanan

  • Evie Robson

  • Lynne Schofield

  • Jane Lucas

Medical Centers

  • Department of Maternal and Child Care, University of North Carolina, Chapel Hill, United States of America

  • Primary Ciliary Dyskinesia Centre, Royal Brompton & Harefield Hospital NHS Foundation Trust, London, United Kingdom

  • Pediatrics, University of British Columbia, Vancouver, Canada

  • Primary Ciliary Dyskinesia Centre, University Hospitals of Leicester NHS Foundation Trust, Leicester, United Kingdom

  • NIHR Applied Research Collaboration Wessex, University of Southampton, Southampton, United Kingdom

  • Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Primary Ciliary Dyskinesia Centre, Leeds Children’s Hospital at Leeds Teaching Hospitals NHS Foundation Trust, Leeds, United Kingdom

  • Department of Psychology, School of Life and Health Sciences, Aston University, Birmingham, United Kingdom

  • Primary Ciliary Dyskinesia Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom

Locations

  • United States

  • United Kingdom

  • Canada

Companies

  • N/A

Study Components

Therapeutic Area

  • Pulmonary/Respiratory Diseases

  • Genetic Disorder

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • Cancer antigen 15-3

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • N/A

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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