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1367 : Patient and Physician Reported Outcomes of Juvenile Systemic Sclerosis Patients Significantly Improve over 12 Months Observation Period in the Juvenile Systemic Scleroderma Inception Cohort

Researchers

Presenter

  • Ivan Foeldvari

Principal Investigators

  • Ozgur Kasapcopur

  • Amra Adrovic

  • Kathryn Torok

  • Maria Teresa Terreri

  • Brian Feldman

  • Jordi Anton

  • Maria Katsicas

  • Valda Stanevica

  • FLAVIO SZTAJNBOK

  • Simone Appenzeller

  • Tadey Avcin

  • Mikhail Kostik

  • Edoardo Marrani

  • Walter Alberto Sifuentes-Giraldo

  • Sindu Johnson

  • Raju Khubchandani

  • Dana Nemcova

  • Maria José Santos

  • Cristina Battagliotti

  • Lillemor Berntson

  • Blanca Bica

  • Jürgen Brunner

  • Rolando Cimaz

  • Despina Eleftheriou

  • Liora Harel

  • Gerd Horneff

  • Mahesh Janarthanan

  • Tilmann Kallinich

  • Kirsten Minden

  • Anjali Patwardhan

  • Dieneke Schonenberg-Meinema

  • Vanessa Smith

  • Nicola Helmus

Medical Centers

  • Hamburger Zentrum fur Kinder-und Jugend rheumatologie, Hamburg, Germany

  • German Rheumatism Research Centre, Berlin, Germany

  • Istanbul University-Cerrahpasa, Cerrahpasa Medical School, Pediatric Rheumatology, Istanbul, Turkey

  • Cerrahpasa Medical Faculty, Istanbul University, Istanbul, Turkey

  • Pediatric Endocrinology, Childrens Hospital Of Pittsburgh of UPMC, Pittsburgh, PA

  • Universidade Federal de Sao Paulo, Sao Paulo, Brazil

  • Division of Rheumatology, The Hospital for Sick Children; Child Health Evaluative Services, SickKids Research Institute; Department of Paediatrics, University of Toronto, Toronto, ON, Canada

  • Pediatric Rheumatology Unit. Hospital Sant Joan de Deu. Universitat de Barcelona, Barcelona, Spain

  • Hospital Durand, Buenos Aires, Argentina

  • Children's Clinical University Hospital, Zemgales priekšpilseta, Riga, Latvia

  • UFRJ/UERJ, São Paulo, Brazil

  • Unicamp, Campinas, Sao Paulo, Brazil

  • University ChildrensHospital, University Medical Centre Ljubljana, Ljubljana, Slovenia

  • St.Petersburg Medical University, St.Petersburg, Russia

  • University of Florence, Florence, Italy

  • Hospital Universitario Ramon y Cajal, Madrid, Spain

  • University of Toronto, Toronto, ON, Canada

  • SRCC Children's Hospital, Mumbai, India

  • Charles Univ and VFN, Prague, Czech Republic

  • Hospital Garcia de Orta, Almada, Charneca da Caparica, Portugal

  • Hospital de Ninos Dr Orlando Alasia, Santa Fe, Argentina

  • Dept of Womens and Childrens Health, Uppsala University, Uppsala, Sweden

  • UNIVERSIDADE FEDERAL DO RIO DE JANEIRO, Rio de Janeiro, Brazil

  • University of Milan, Milan, Italy

  • Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom

  • Schneider Children's Medical center, Tel Aviv University, Nettnja, Israel

  • Asklepios Klinik Sankt Augustin, Sankt Augustin, Germany

  • SRI RAMACHANDRA INSTITUTE OF HIGHER EDUCATION AND RESEARCH, Chennai, India

  • Charité - Universitätsmedizin Berlin, Nuremberg, Germany

  • Brustzentrum Charite-Universitatsmedizin, Berlin, Germany

  • University of Missouri-Columbia, Columbia, MO

  • Cancer Center Amsterdam, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, Netherlands

  • Department of Rheumatology, Ghent University Hospital; Department of Internal Medicine, Ghent University; Unit for Molecular Immunology and Inflammation, VIB Inflammation Research Center (IRC), Ghent, Belgium

  • Hamburg Centre for Pediatric and Adolescent Rheumatology, Hamburg, Germany

Locations

  • Brazil

  • Germany

  • Turkey

  • United States

  • Canada

  • Spain

  • Argentina

  • Latvia

  • Slovenia

  • Russia

  • Italy

  • India

  • Czech Republic

  • Portugal

  • Sweden

  • United Kingdom

  • Israel

  • Netherlands

  • Belgium

Companies

  • N/A

Study Components

Therapeutic Area

  • Autoimmune (AI)

  • Cardiovascular (CVS)

Disease

  • Scleroderma

  • Raynaud syndrome

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Cohort

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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