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: Research priorities in alpha-1 antitrypsin deficiency (AATD for healthcare professionals

Researchers

Presenter

  • Miriam Barrecheguren Fernandez

Principal Investigators

  • Maria Sucena

  • Karen O´hara

  • Marion Wilkens

  • Jeanette Boyd

  • Ewa Kolda

  • Alice Turner

  • Gerry Mcelvaney

  • Ilaria Ferrarotti

  • Jan Stolk

  • Joanna Chorostowska-Wynimko

  • Robert Stockley

  • Timm Greulich

  • Marc Miravitlles

Medical Centers

  • Medical Oncology Department, Hospital Universitario Vall D'Hebron, Barcelona, Spain

  • Centro Hospitalar e Universitário do Porto, Porto, Portugal

  • Alpha-1 UK Support Group, UK. Alpha-1 Global, UK, United Kingdom

  • Patientenorganisation Alpha1 Deutschland e.V, Germany. Alpha-1 Global, Germany, Germany

  • European Lung Foundation, Sheffield, United Kingdom

  • Pulmonology, Allergology and Thoracic Oncology Clinic, University Hospital of Lord’s Transfiguration, Poznań, Poland, Poznan, Poland

  • Respiratory Medicine, University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Birmingham, UK, Birmingham, United Kingdom

  • Irish Centre for Rare Lung Diseases, Royal College of Surgeons in Ireland, Beaumont Hospital, Dublin, Ireland, Dublin, Ireland

  • Department of Internal Medicine and Therapeutics, Pneumology Unit IRCCS San Matteo Hospital Foundation, University of Pavia, Pavia, Italy, Pavia, Italy

  • Department of Rheumatology, Leiden University Medical Center, Leiden, the Netherlands, Leiden, Netherlands

  • Department of Genetics and Clinical Immunology, National Institute of Tuberculosis & Lung Diseases, Warsaw, Poland

  • Lung Investigation Unit Medicine - University Hospitals Birmingham NHS Foundation Trust Queen Elizabeth Hospital Birmingham, UK, Birmingham, United Kingdom

  • University Medical Centre Giessen and Marburg, Philipps-University, Department of Medicine, Pulmonary and Critical Care Medicine, Member of the German Centre for Lung Research (DZL, Marburg, Germany, Marburg, Germany

  • 12. Pneumology Department, Hospital Universitari Vall d'Hebron/Vall d'Hebron Research Institute (VHIR, CIBER de Enfermedades Respiratorias (CIBERES, Barcelona, Spain, Barcelona, Spain

Locations

  • Spain

  • Portugal

  • United Kingdom

  • Germany

  • Poland

  • Ireland

  • Italy

  • Netherlands

Companies

  • N/A

Study Components

Therapeutic Area

  • Pulmonary/Respiratory Diseases

  • Gastroenterology (GU)

  • Genetic Disorder

Disease

  • Alpha-1 antitrypsin (A1AT) deficiency

Biomarkers

  • N/A

Drug/Treatment

  • Alpha 1-Antitrypsin

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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