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OC 27.1 : The type and frequency of bleeds in 870 children with severe hemophilia A and B on primary prophylaxis: Data from the PedNet study group

Researchers

Presenter

  • H. van den Berg

Principal Investigators

  • M. Carcao

  • H. Chambost

  • K. Fischer

  • G. Kenet

  • C. Knigs

  • R. Ljung

  • C. Male

  • J. Motwani

Medical Centers

  • PedNet, Baarn, Utrecht, Netherlands

  • Unidad de Coagulopatías, Hopital Universitario La Paz, Madird, Castilla-La Mancha, Spain

  • Division of Haematology/Oncology, Department of Paediatrics and Research Institute, Hospital for Sick Children, University of Toronto, Toronto, ON, Canada

  • APHM, La Timone Children's Hospital, Center for Bleeding Disorders & Aix Marseille Univ, INSERM, INRA, C2VN, Marseille, France

  • Department of Clinical Sciences, Lund University, Lund; Department of Pediatrics and Malmö Centre for Thrombosis and Haemostasis, Skåne University Hospital, Malmo, Skane Lan, Sweden

  • The National Haemophilia Centre, The Amalia Biron Thrombosis Research Institute, Sheba Medical Centre, Tel Hashomer, Tel Aviv University, Tel Aviv, Israel, Tel Aviv, Tel Aviv, Israel

  • University Hospital Frankfurt, Medical Clinic II, Goethe University, Frankfurt, Hessen, Germany

  • Lund University, Department of Clinical Sciences Lund, Rheumatology, Lund, Sweden, Lund, Sweden

  • Medical University of Vienna, Vienna, Austria, Vienna, Wien, Austria

  • Birmingham Women's and Children's NHS Foundation Trust Birmingham GB Birmingham United Kingdom

Locations

  • Netherlands

  • Spain

  • Canada

  • France

  • Sweden

  • Israel

  • Germany

  • Austria

  • United Kingdom

Companies

  • N/A

Study Components

Therapeutic Area

  • Blood/haematological Diseases

Disease

  • Hemophilia

Biomarkers

  • N/A

Drug/Treatment

  • FVIII

Outcome

  • N/A

Study Design

  • Observational

  • Multicenteric

  • Prospective

  • Cohort

Phase

  • NA

Study Id's

  • NCT02979119

Sponsors

  • N/A

Result

  • N/A

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