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PB1762 : IMPACT OF SICKLE CELL DISEASE ON DAILY LIFE IN PATIENTS MANAGING VASO-OCCLUSIVE CRISES AT HOME VS THE EMERGENCY ROOM/HOSPITAL: RESULTS FROM THE INTERNATIONAL SICKLE CELL WORLD ASSESSMENT SURVEY (SWAY)

Researchers

Presenter

  • Erfan Nur

Principal Investigators

  • Biree Andemariam

  • Baba Inusa

  • Fuad El Rassi

  • Beverley Francis-Gibson

  • Caterina Minniti

  • Cassandra Trimnell

  • Miguel R. Abboud

  • Jean-Benot Arlet

  • Raffaella Colombatti

  • Mariane de Montalembert

  • Suman Jain

  • Wasil Jastaniah

  • Marimilia Pita

  • Emerenziana Marturano

  • Tom Bailey

  • Olivera Rajkovic-Hooley

  • Ifeyinwa Osunkwo

Medical Centers

  • Hematology,College of Medicine, Umm-AlQura University,Mecca,Saudi Arabia

  • Sickle Cell 101,San Jose,United States

  • Department of Hematology,Amsterdam University Medical Center, location VU Medical Center,Amsterdam,Netherlands

  • American University of Beirut Medical Center, Riad El Solh, Beirut, Lebanon

  • AP-HP Hopital Universitaire Necker Enfants Malades, Paris, France

  • Sickle Cell Society, London, United Kingdom

  • Thalassemia And Sickle Cell Society,Hyderabad,Indien

  • Novartis Pharma Corp, Basel, Switzerland

  • New England Sickle Cell Institute, Division of Hematology-Oncology, Neag Comprehensive Cancer Center, UCONN Health, University of Connecticut,Farmington,Vereinigte Staaten

  • Department of Hematology and Medical Oncology,Emory University School of Medicine and Georgia Comprehensive Sickle Cell Center at Grady Health System,Atlanta,États-unis

  • Sickle Cell Disease Enterprise at The Levine Cancer Institute/Atrium Health,Charlotte,United States

  • Adelphi Real World, Bollington, United Kingdom

  • Montefiore Health System,Albert Einstein College of Medicine,New York,Vereinigte Staaten

  • Clinica di Oncoematologia Pediatrica, Dipartimento della Salute della Donna e del Bambino Azienda Ospedaliera,Università di Padova,Padova,Italie

  • Department of Hematology and BMT,Samaritano Hospital,São Paulo,Brazil

  • Hopital European Georges Pompidou, Paris, France

  • Paediatric Haematology, Evelina Childre-s Hospital, Guys and St Thomas Hospital, London, United Kingdom

  • Sickle Cell Disease Association of America, Baltimore, MD

Locations

  • Saudi Arabia

  • United States

  • Netherlands

  • Lebanon

  • France

  • United Kingdom

  • India

  • Switzerland

  • Italy

  • Brazil

Companies

  • N/A

Study Components

Therapeutic Area

  • Blood/haematological Diseases

Disease

  • Sickle cell anemia

Biomarkers

  • Stearoyl-CoA desaturase

  • Volatile organic compounds

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Multinational

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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