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PB2354 : THE IMPACT OF ACUTE HEPATIC PORPHYRIA ON MENTAL HEALTH: RESULTS FROM THE PORPHYRIA WORLDWIDE PATIENT EXPERIENCE RESEARCH (POWER) STUDY

Researchers

Presenter

  • Danielle Nance

Principal Investigators

  • Stephen Meninger

Medical Centers

  • Alnylam Pharmaceuticals,Maidenhead,Royaume-uni

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Global Porphyria Advocacy Coalition,Durham City,Storbritannien

  • Global Porphyria Advocacy Coalition,Durham City,Vereinigtes Königreich

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Alnylam Pharmaceuticals,Maidenhead,Reino Unido

  • American Porphyria Foundation,Bethesda,USA

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Cerner Enviza,North Kansas City,Estados Unidos

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • Alnylam Pharmaceuticals,Maidenhead,Storbritannien

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Banner Health,Gilbert,Verenigde Staten

  • American Porphyria Foundation,Bethesda,USA

  • American Porphyria Foundation,Bethesda,USA

  • Global Porphyria Advocacy Coalition,Durham City,Vereinigtes Königreich

  • Alnylam Pharmaceuticals,Maidenhead,United Kingdom

  • Alnylam Pharmaceuticals,Maidenhead,Reino Unido

  • Banner Health, Gilbert, AZ

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Agios Pharmaceuticals Inc.,Cambridge,Estados Unidos

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Cerner Enviza,North Kansas City,United States

  • Cerner Enviza,North Kansas City,Stati Uniti

  • Massachusetts General Hospital, Boston, MA

  • AGIOS Pharmaceuticals Inc,Cambridge,United States

  • American Porphyria Foundation,Bethesda,USA

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Cerner Enviza,North Kansas City,USA

  • Banner Health,Gilbert,Stati Uniti

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Cerner Enviza,North Kansas City,United States

  • Alnylam Pharmaceuticals,Maidenhead,Соединённое Королевство

  • Massachusetts General Hospital, Boston, MA, United States

  • Banner Health,Gilbert,Estados Unidos

  • Massachusetts General Hospital,Boston,Vereinigte Staaten

  • Alnylam Pharmaceuticals,Cambridge,USA

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Banner Health, Gilbert, AZ, United States,

  • Global Porphyria Advocacy Coalition,Durham City,Соединённое Королевство

  • Alnylam Pharmaceuticals,Maidenhead,Vereinigtes Königreich

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • American Porphyria Foundation,Bethesda,USA

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Stadtspital Zürich, Triemli, Institute of Laboratory Medicine,Zürich,Швейцария

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • American Porphyria Foundation,Bethesda,USA

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Banner Health,Gilbert,Verenigde Staten

  • Swiss Society for Porphyria,Zürich,Швейцария

  • American Porphyria Foundation,Bethesda,USA

  • Banner Health,Gilbert,États-unis

  • Cerner Enviza,North Kansas City,Stati Uniti

  • Massachusetts General Hospital,Boston,Vereinigte Staaten

  • Alnylam Pharmaceuticals,Maidenhead,Verenigd Koninkrijk

  • Cerner Enviza,North Kansas City,United States

Locations

  • United States

  • United Kingdom

  • Switzerland

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Blood/haematological Diseases

  • Central Nervous System (CNS)

Disease

  • Acute hepatic porphyria

  • Anxiety

  • Hepatic porphyria

  • Depression

  • Porphyria

Biomarkers

  • N/A

Drug/Treatment

  • ALN-AS1

  • hemin

Outcome

  • N/A

Study Design

  • N/A

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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