// App-Quantinova.ai

P1722 : CHANGES IN ACUTE HEPATIC PORPHYRIA HEALTH IMPACTS SINCE INITIAL DIAGNOSIS: RESULTS FROM THE PORPHYRIA WORLDWIDE PATIENT EXPERIENCE RESEARCH (POWER) STUDY

Researchers

Presenter

  • Danielle Nance

Principal Investigators

  • Tarek Mnif

  • Stephen Meninger

Medical Centers

  • Alnylam Pharmaceuticals,Maidenhead,Royaume-uni

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Global Porphyria Advocacy Coalition,Durham City,Vereinigtes Königreich

  • Cerner Enviza,Paris,Frankrike

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Alnylam Pharmaceuticals,Maidenhead,Reino Unido

  • Alnylam Pha

  • American Porphyria Foundation,Bethesda,USA

  • Cerner Enviza,Paris,Frankrike

  • Cerner Enviza,Paris,Франция

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Cerner Enviza,Paris,Frankrike

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Banner Health,Gilbert,Verenigde Staten

  • American Porphyria Foundation,Bethesda,USA

  • American Porphyria Foundation,Bethesda,USA

  • Global Porphyria Advocacy Coalition,Durham City,Vereinigtes Königreich

  • Alnylam Pharmaceuticals,Maidenhead,United Kingdom

  • Alnylam Pharmaceuticals,Maidenhead,Reino Unido

  • Alnylam Pharmaceuticals,Maidenhead,Соединённое Королевство

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Agios Pharmaceuticals Inc.,Cambridge,Estados Unidos

  • Cerner Enviza,Paris,Frankrike

  • AGIOS Pharmaceuticals Inc,Cambridge,United States

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Banner Health,Gilbert,Stati Uniti

  • Global Porphyria Advocacy Coalition,Durham City,Royaume-uni

  • Stadts

  • Massachusetts General Hospital, Boston, MA, United States

  • Banner Health,Gilbert,Estados Unidos

  • Massachusetts General Hospital,Boston,Vereinigte Staaten

  • Banner Health, Gilbert, AZ, United States,

  • Global Porphyria A

  • Alnylam Pharmaceuticals,Maidenhead,Vereinigtes Königreich

  • American Porphyria Foundation,Bethesda,USA

  • American Porphyria Found

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • Cerner Enviza,Paris,Frankrike

  • Massachusetts General Hospital,Boston, MA,Stati Uniti

  • American Porphyria Foundation,Bethesda,USA

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Swiss Society for Porphyria,Zürich,Switzerland

  • Banner Health,Gilbert,Verenigde Staten

  • Cerner Enviza,Paris,Frankrike

  • Massachusetts General Hospital, Boston, MA

  • Swiss Society for Porphyria,Zürich,Швейцария

  • American Porphyria Foundation,Bethesda,USA

  • Banner Health,Gilbert,États-unis

  • Banner Health, Gilbert, AZ

  • Massachusetts General Hospital,Boston,Vereinigte Staaten

  • Alnylam Pharmaceuticals,Maidenhead,Verenigd Koninkrijk

Locations

  • United States

  • United Kingdom

  • Switzerland

  • France

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Blood/haematological Diseases

  • Central Nervous System (CNS)

Disease

  • Acute hepatic porphyria

  • Anxiety

  • Hepatic porphyria

  • Depression

  • Porphyria

Biomarkers

  • N/A

Drug/Treatment

  • ALN-AS1

  • hemin

Outcome

  • N/A

Study Design

  • N/A

Phase

  • N/A

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

Copyright © 2026. QuantiNova All rights reserved