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: European Registries for Rare Endocrine Conditions (EuRRECa): results from the core registry on hypothalamic and pituitary conditions

Researchers

Presenter

  • Ana Luisa Priego Zurita

Principal Investigators

  • Nienke Biermasz

  • Jillian Bryce

  • Pia Burman

  • Luis Castao

  • Mehul Dattani

  • Olaf M. Dekkers

  • Benedetta Fibbi

  • Hoong-Wei Gan

  • Sonia Gaztambide

  • Gabriele Haeusler

  • Florentina Haufler

  • Harshini Katugampola

  • Lasolle Hlne

  • Hermann L Mller

  • Gerald Raverot

  • Itxaso Rica

  • Charlotte van Beuzekom

  • Zdenek Sumnik

  • Friso de Vries

  • Amir Zamanipoor Najafabadi

  • Faisal Ahmed

  • Alberto M Pereira

Medical Centers

  • Leiden University Medical Centre, Department of Medical Decision Making, Leiden, Netherlands

  • University of Glasgow, Office for Rare conditions, Glasgow, United Kingdom

  • Skane University Hospital Malmö, University of Lund, Department of Endocrinology, Lund, Sweden

  • Hospital Universitario Cruces, UPV/EHU, Biocruces Bizkaia, CIBERDEM/CIBERER, Bilbao, Spain

  • University College London Great Ormond Street Institute of Child Health, Genetics & Genomic Medicine Programme, London, United Kingdom

  • Careggi University Hospital, Endocrinology Unit, Florence, Italy

  • Great Ormond Street Hospital for Children, Department of Gastroenterology, London, United Kingdom

  • Medical University of Vienna, Department of Pediatrics and Adolescent Medicine, Vienna Bone and Growth Center, Vienna, Austria

  • Reference Center for Rare Pituitary Diseases HYPO, Groupement Hospitalier Est, Hospices Civils de Lyon, Endocrinology Department, Bron, France

  • University Children’s Hospital, Klinikum Oldenburg AöR, Department of Pediatrics and Pediatric Hematology/Oncology, Oldenburg, Germany

  • Charles University - 2nd Faculty of Medicine and University Hospital Motol, Department of Biology and Medical Genetics, Prague, Czech Republic

  • Leiden University Medical Center (LUMC), University Neurosurgical Center Holland, Leiden, Netherlands

  • University of glasgow, Developmental Endocrinology Research Group, Royal Hospital for Children, Glasgow, UK.

Locations

  • Netherlands

  • United Kingdom

  • Sweden

  • Spain

  • Italy

  • Austria

  • France

  • Germany

  • Czech Republic

Companies

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Study Components

Therapeutic Area

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Disease

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Biomarkers

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Drug/Treatment

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Outcome

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Study Design

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Phase

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Study Id's

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Sponsors

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Result

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