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: Description of clinical symptoms of a large international cohort of patients with valosin-containing-protein related disease

Researchers

Presenter

  • Marta Caballero-�vila

Principal Investigators

  • Chiseko Ikenaga

  • Chiara Marini-Bettolo

  • Michela Guglieri

  • Volker Straub

  • Roco Nur Villar-Quiles

  • Sarah Souvannanorath

  • Pascal Lafret

  • Tanya Stojkovic

  • Conrad Weihl

  • Jordi Daz-Manera

Medical Centers

  • Department of Medical Oncology, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain

  • Department of Internal Medicine, Washington University School of Medicine, St. Louis, MO

  • John Walton Muscular Dystrophy Research Centre, Newcastle, , United Kingdom

  • APHP, Centre de référence des maladies neuromusculaires, Institut de Myologie, Sorbonne Université, APHP, Hôpital Pitié-Salpêtrière, Paris, France

  • Centre de référence des maladies neuromusculaires, hôpital Henri-Mondor, Assistance publique-Hôpitaux de Paris, Créteil, France

  • Département de neurologie, Hôpital Raymond-Poincaré, Garches, France

Locations

  • Spain

  • United States

  • United Kingdom

  • France

Companies

  • N/A

Study Components

Therapeutic Area

  • N/A

Disease

  • N/A

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Observational

  • Multinational

  • Multicenteric

  • Cohort

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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