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: "in the Patients' Hands"- a Structured Survey of Patient Voices to Prioritise Research Questions in Rare Inherited Anaemias: The James Lind Alliance Priority Setting Partnership

Researchers

Presenter

  • Jenny Welch

Principal Investigators

  • Nick Meade

  • Dominic Messenger

  • Amy Hunter

  • Anupama Rao

  • Subarna Chakravorty

  • Rachel Wearmouth

  • Anju Chalin

  • Kristina Staley

  • Sheela Upadhyaya

  • Irene Roberts

  • Noemi Roy

Medical Centers

  • self-employed, Sheffield, United Kingdom

  • Genetic Alliance UK, Genetic Alliance UK, London, United Kingdom

  • NCRI, London, United Kingdom

  • CAN Mezzanine,, Genetic Alliance UK, London, United Kingdom

  • Great Ormond Street Hospital, London, United Kingdom

  • Kings College London, London, United Kingdom

  • self-employed, Wrabness, United Kingdom

  • Weatherall Institute of Molecular Medicine, Oxford, United Kingdom

  • Oxford NIHR Biomedical Research Centre, Oxford, United Kingdom

  • self-employed, Ross on Wye, United Kingdom

  • James Lind Alliance, London, United Kingdom

  • MRC Molecular Haematology Unit, Weatherall Institute of Molecular Medicine, University of Oxford and BRC Blood Theme, NIHR Oxford Biomedical Centre, Oxford, United Kingdom

  • MRC Molecular Haematology Unit and Paediatrics, MRC Weatherall Institute of Molecular Medicine, Oxford, United Kingdom

  • MRC Molecular Haematology Unit, Weatherall Institute of Molecular Medicine, University of Oxford, Oxford, United Kingdom

  • Department of Cellular Pathology, Oxford University Hospitals NHS Foundation Trust, Oxford, United Kingdom

Locations

  • United Kingdom

Companies

  • N/A

Study Components

Therapeutic Area

  • N/A

Disease

  • N/A

Biomarkers

  • Regenerating islet-derived 1 alpha

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Cross Over

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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