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: 99.3% of Inhibitors in Severe Hemophilia a Develop before Exposure Day 75. Time to Change Definition of Previously Treated Patients; Data from 1038 Patients with Severe Hemophilia a of the Pednet Registry

Researchers

Presenter

  • Marijke Van den Berg

Principal Investigators

  • Elena Santagostino

  • Herve Chambost

  • Karin Kurnik

  • Gili Kenet

  • Christoph Male

  • Anne Rafowicz

  • Helen Platokouki

  • Susanna Ranta

  • Christel Van Geet

  • Johannes Oldenburg

  • Ri Liesner

  • Segolene Claeyssens

  • Nadine Gretenkort-Andersson

  • Anne Mkipernaa

  • Torben Stamm Mikkelsen

  • Manuel Carcao

  • Beatrice Nolan

  • Liz Chalmers

  • A.R. Cid

  • Teresa lvarez-Roman

  • Carmen Altisent

  • Georges Rivard

  • Claudio Molinari

  • Martina Buehrlen

  • Rainer Kobelt

  • Carmen Escuriola

  • Manuela Carvalho

  • Christoph Koenigs

  • Mike Williams

  • Rolf Ljung

Medical Centers

  • PedNet Haemophilia Research Foundation, Baarn, Netherlands

  • Blood Center of Wisconsin, Madison

  • van Creveldkliniek, University Medical Center Utrecht

  • Angelo Bianchi Bonomi Haemophilia andThrombosis Center. IRCCS Ca Granda Foundation,Maggiore Hospital, Milan, Italy

  • CHU Hopital Timone Enfants, Marseille, FRA

  • Pediatric Hemophilia Centre, Munich, Germany

  • Department of Paediatrics, Medical University Hospital of Vienna, Vienna, Austria

  • Service Hématologique, CRTH Bicetre, Paris – Le Kremlin Bicetre, France

  • St. Sophia Childrens Hospital, Athens, Greece

  • Pediatric Coagulation Center, Karolinska University Hospital and Karolinska Institutet, Stockholm, SWE

  • UZ Gasthuisberg Leuven, Leuven, BEL

  • Institute of Experimental Hematology and Transfusion Medicine, University Hospital Bonn, Bonn, Germany

  • University Hospital Bonn, Bonn, Germany

  • Haemophilia Comprehensive Care Centre, Great Ormond Street Hospital for Children, London, United Kingdom

  • Haemophilia Comprehensive Care Centre, Great Ormond Street Hospital for Children, London, United Kingdom

  • Centre Régional d'Hémophilie, Toulouse University Hospital, Toulouse Cedex 9, FRA

  • Department of Pediatrics, Skane University Hospital, Lund, Sweden

  • Helsinki University Hospital, Helsinki, Finland

  • Kommune hospital skejby sygehus, aarhus, Denmark

  • Hospital for Sick Children, Toronto, ON, Canada

  • Our Lady's Children's Hospital, Dublin, Ireland

  • Royal Hospital for Sick Children, Glasgow, United Kingdom

  • Unidad de Hemostasia y Trombosis, Hospital Universitario y Politecnico La Fe, Valencia, Spain

  • Hospital Universitario La Paz, Madrid, Spain

  • H.Vall d'Hebron,Barcelona,Spanje

  • CHU St. Justine, Montreal, Canada

  • Gaslini Hospital, Genova, Italy

  • Prof. Hess Kinderklinik, Bremen, Germany

  • Hämophiliezentrum, Wabern, Switzerland

  • HZRM Hamophilie Zentrum Rhein Main GmbH, Frankfurt, Germany

  • Centro Hospitalar do Porto, Porto, Portugal

  • Dept of Pediatrics, University Hospital Frankfurt, Frankfurt, Germany

  • Birmingham Children's Hospital, Birmingham, United Kingdom

  • Lund University, Dept. of Clinical Sciences Pediatrics and Pediatric Clinic, Skane University Hospital, Lund, SWE

Locations

  • Netherlands

  • Italy

  • Israel

  • Austria

  • France

  • Greece

  • Germany

  • United Kingdom

  • Sweden

  • Denmark

  • Ireland

  • Spain

  • Canada

  • Switzerland

  • Portugal

Companies

  • N/A

Study Components

Therapeutic Area

  • Blood/haematological Diseases

Disease

  • Hemophilia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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