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1127 : Whimsical (Waldenstrom's Macroglobulinemia Study Involving CArt-wheeL): A Global Patient-Derived Data Registry Capturing Treatment, Quality of Life and COVID-19 Data

Researchers

Presenter

  • Ibrahim Tohidi-Esfahani

Principal Investigators

  • Andrew Warden

  • Elena Malunis

  • Peter Liburdi deNardis

  • Javier Haurat

  • Marita Black

  • Stephen Opat

  • Shirley D'Sa

  • Marie Jos Kersten

  • Ruth Spearing

  • Maria Lia Palomba

  • Adam J Olszewski

  • Carl Harrington

  • Clare Scott

  • Judith Trotman

Medical Centers

  • Haematology, Concord Repatriation General Hospital, Concord, Australia

  • WMozzies Australian Patient Support Group for Waldenström’s Macroglobulinemia, Sydney, Australia

  • International Waldenström’s Macroglobulinemia Foundation, Sarasota, FL

  • BioGrid Australia, Melbourne, Australia

  • CART-Wheel.org, Melbourne, Australia

  • Clinical Haematology, Monash Health and Monash University, Clayton, Australia

  • Deakin University, Melbourne, Australia

  • UCLH Centre for Waldenström's Macroglobulinemia and Related Conditions, University College London Hospitals NHS Foundation Trust,London,Vereinigtes Königreich

  • Amsterdam University Medical Centers, University of Amsterdam, Cancer Center

  • Canterbury District Health Board, Christchurch, New Zealand

  • Christchurch Hospital,Christchurch,USA

  • Lymphoma Service, Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY

  • Department of Pharmacology, Weill Cornell Medical College, New York, NY

  • Lifespan Cancer Institute, Warren Alpert Medical School of Brown University, Cranston, RI

  • Medicine, Division Hematology/Oncology, Rhode Island Hospital, Providence, RI

  • Department of Medical Oncology, Royal Melbourne Hospital, Melbourne, Australia

  • Walter and Eliza Hall Institute of Medical Research, Parkville, Australia

Locations

  • Australia

  • United States

  • United Kingdom

  • Netherlands

Companies

  • N/A

Study Components

Therapeutic Area

  • Infectious Diseases (ID)

Disease

  • Waldenstrom’s macroglobulinemia

  • Coronavirus disease

  • Lymphomas

  • Solid malignancies

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Multinational

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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