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: Associations between PCD-specific health-related quality of life (QOL-PCD) outcomes and clinical measures

Researchers

Presenter

  • Helene Kobbernagel

Principal Investigators

  • Frederik F. Buchvald

  • Laura Behan

  • Jane S. Lucas

  • Eric G. Haarman

  • Niels W. Rutjes

  • Anika Gross

  • Heimut Omran

  • Claire Hogg

  • Carmen Casaulta

  • Claudia E. Kuehni

  • Samuel A. Collins

  • Maria C. Philipsen

  • Alexandra L. Quittner

  • Kim G. Nielsen

Medical Centers

  • Danish PCD Centre, Pediatric Pulmonary Service, Department of Pediatrics and Adolescent Medicine, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.

  • Primary Ciliary Dyskinesia Centre, NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom

  • Department of Pediatric Pulmonology, VU University Medical Center Amsterdam, Amsterdam, Netherlands

  • Department of Radiation Oncology, Academic Medical Center, Amsterdam, Netherlands

  • Department of General Pediatrics, University Childrens Hospital, Munster, Germany

  • Paediatric Respiratory Department, Royal Brompton Hospital, London, United Kingdom

  • Division of Respiratory Medicine, Department of Pediatrics, Inselspital and University of Bern, Bern, Switzerland

  • Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland

  • Department of Psychology, University of Miami, Coral Gables, Florida, United States of America

Locations

  • Denmark

  • United Kingdom

  • Netherlands

  • Germany

  • Switzerland

  • United States

Companies

  • N/A

Study Components

Therapeutic Area

  • N/A

Disease

  • N/A

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Multicenteric

  • Prospective

  • Cross-Sectional

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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