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: Clinical outcome measures for use in primary ciliary dyskinesia research: a scoping systematic review

Researchers

Presenter

  • Bruna Rubbo

Principal Investigators

  • Florian Gahleitner

  • Claire Jackson

  • Myrofora Goutaki

  • Florian Halbeisen

  • Jana Hueppe

  • Laura Behan

  • Guillaume Thouvenin

  • Claudia Kuehni

  • Philipp Latzin

  • Jane Lucas

Medical Centers

  • Primary Ciliary Dyskinesia Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom

  • Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland

  • AP-HP, Pneumologic unit, Trousseau hospital, Sorbonne Universités, INSERM, Centre de Recherche Saint-Antoine (CRSA), Paris, France

  • Department of Paediatric Respiratory Medicine, Inselspital, University Children's Hospital, Bern, Switzerland

Locations

  • United Kingdom

  • Switzerland

  • France

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Pulmonary/Respiratory Diseases

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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