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: A review of the experiences of children and young adults with Primary Ciliary Dyskinesia (PCD) treated in a specialist PCD service in England

Researchers

Presenter

  • Hannah Wilkins

Principal Investigators

  • Corine Driessens

  • Charlotte Kewell

  • Fiona Copeland

  • Bruna Rubbo

  • Laura Bayton

  • Victoria Bright

  • Amanda Friend

  • Rajinder Kang

  • Gemma Marsh

  • Samantha Packham

  • Alison Truscott

  • Katy Waller

  • Siobhan Carr

  • Philip Chetcuti

  • Clare Hogg

  • Jane Lucas

  • Eduardo Moya

  • Manjith Narayanan

  • Kenia Priti

  • Chris OCallaghan

  • Woolf Walker

Medical Centers

  • Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust ; Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Primary Ciliary Dyskinesia Centre, University hospital Southampton NHS Trust ; NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust ; Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Primary Ciliary Dyskinesia Family Support Group, London, United Kingdom

  • Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust ; Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Department of Paediatrics, Primary Ciliary Dyskinesia Centre, Royal Brompton and Harefield Foundation Trust, London, United Kingdom

  • Primary Ciliary Dyskinesia Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, United Kingdom

  • Leicester National Primary Ciliary Dyskinesia diagnosis and management service, Department of Paediatrics, University Hospitals of Leicester NHS trust, Leicester, United Kingdom

  • Leeds Children Hospital, Leeds, England, United Kingdom

  • Primary Ciliary Dyskinesia Centre, University hospital Southampton NHS Trust ; NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust ; Academic Unit of Clinical and Experimental Sciences, University of Southampton Faculty of Medicine, Southampton, United Kingdom

  • Anaesthesia, Bradford TeachingHospitals NHS Trust, Bradford, United Kingdom

  • Leicester National Primary Ciliary Dyskinesia diagnosis and management service, Leicester, United Kingdom

  • 5The Birmingham Children’s Hospital NHS Trust Birmingham United Kingdom

Locations

  • United Kingdom

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Pulmonary/Respiratory Diseases

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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