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: Towards standardized follow-up care for patients with Primary Ciliary Dyskinesia (PCD)

Researchers

Presenter

  • Myrofora Goutaki

Principal Investigators

  • Florian S. Halbeisen

  • Claire Hogg

  • Carmen Casaulta

  • Israel Amirav

  • Juerg Barben

  • Eduardo Moya

  • Kim G. Nielsen

  • Guillaume Thouvenin

  • Jane S. Lucas

  • Claudia E. Kuehni

Medical Centers

  • Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland

  • Department of Paediatrics, Primary Ciliary Dyskinesia Centre, Royal Brompton and Harefield Foundation Trust, London, United Kingdom

  • Department of Paediatric Respiratory Medicine, Inselspital, University Children's Hospital, Bern, Switzerland

  • Department of Pediatrics, Faculty of Medicine, Bar IIan University, Israel, Ramat Gan, Israel

  • Division of Pediatric Pulmonology, Childrens Hospital, St. Gallen, Switzerland

  • Division of Services for Women and Children, Women's and Newborn Unit Bradford Royal Infirmary, University of Bradford, West Yorkshire , United Kingdom

  • Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark

  • Paediatric Pulmonary Department, Trousseau Hospital APHP, Sorbonne Universities and Pierre et Marie Curie University, Paris, France

  • Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University of Southampton, Southampton, United Kingdom

Locations

  • Switzerland

  • United Kingdom

  • Israel

  • Denmark

  • France

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Pulmonary/Respiratory Diseases

Disease

  • Primary ciliary dyskinesia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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