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BSH19‐EP‐056 : Ask the patients‐ a structured survey of patient voices to prioritise research questions in rare inherited anaemias: the James Lind Alliance Priority Setting Partnership

Researchers

Presenter

  • J. Welch

Principal Investigators

  • N. Meade

  • D. Messenger

  • A. Hunter

  • A. Rao

  • S. Chakravorty

  • R. Wearmouth

  • A. Chalin

  • L. Jantjes

  • K. Staley

  • S. Upadhyaya

  • I. Roberts

  • N. Roy

Medical Centers

  • Oxford BRC JLA PSP, Oxford BRC JLA PSP, Oxford

  • Genetic Alliance UK, London, UK

  • Oxford BRC JLA PSP, Oxford

  • Paediatric Haematology, Great Ormond Street Hospital

  • Paediatric Gastroenterology, King's College Hospital

  • James Lind Alliance, London

  • Molecular Haematology Unit, University Of Oxford

  • Haematology Department, Oxford University Hospitals NHS Trust, Oxford, United Kingdom

Locations

  • United Kingdom

Companies

  • N/A

Study Components

Therapeutic Area

  • N/A

Disease

  • N/A

Biomarkers

  • Regenerating islet-derived 1 alpha

Drug/Treatment

  • N/A

Outcome

  • N/A

Study Design

  • Cross Over

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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