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: SUN-529 Burden of Illness in Adults with Hypophosphatasia: Data From the Global Hypophosphatasia Patient Registry

Researchers

Presenter

  • Priya Kishnani

Principal Investigators

  • Anna Petryk

  • Wolfgang Hoegler

  • Agnes Linglart

  • Gabriel Martos-Moreno

  • Keiichi Ozono

  • Shona Fang, ScD

  • Cheryl Rockman-Greenberg

  • Lothar Seefried

Medical Centers

  • Duke University, Durham, North Carolina, United States

  • Alexion Pharmaceuticals, Inc., Boston, United States

  • Univ Klinik für Kinderheilkunde, Johannes Kepler University, Linz, , Austria

  • APHP, Reference Center for Rare Disorders of Calcium and Phosphate Metabolism, Paris, , France

  • Hospital Infantil Univesitario Niño Jesús, IIS La Princesa, Universidad Autónoma de Madrid, Madrid, , Spain

  • Departmentof Pediatrics, Osaka University School of Medicine, Osaka, Japan

  • The Childrens Hospital Research Institute of Manitoba, Winnipeg, MB, Canada

  • University of Wurzburg, Wurzburg, Germany

Locations

  • United States

  • Austria

  • France

  • Spain

  • Japan

  • Canada

  • Germany

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

Disease

  • Hypophosphatasia

Biomarkers

  • Alkaline Phosphatase, Biomineralization Associated

Drug/Treatment

  • Alkaline phosphatase

  • Strensiq

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A

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