// App-Quantinova.ai

: HaemoValue: Development of a Set of Outcomes for Measuring Value in Persons with Haemophilia

Researchers

Presenter

  • E. van Balen

Principal Investigators

  • M. Cnossen

  • G. Dolan

  • V. Blanchette

  • K. Fischer

  • D. Gue

  • J. O'Hara

  • A. Iorio

  • S. Jackson

  • B. Konkle

  • D. Nugent

  • D. Coffin

  • G. Pierce

  • M. Skinner

  • C. Smit

  • A. Srivastava

  • F. Van Eenennaam

  • J. van derBom

  • S. Gouw

Medical Centers

  • Leiden University Medical Center, Department of Clinical Pharmacy and Toxicology, Leiden, Netherlands

  • Irish Haemophilia Society, Dublin 8, Ireland

  • Erasmus University Medical Center, Pediatric Hematology, Rotterdam, the Netherlands

  • Gu-s and St Thoma- NHS, London, United Kingdom

  • Hospital for Sick Children, University of Toronto, Division of Pediatric Hematology/Oncology, Toronto, Canada

  • University of Alberta, Department of Paediatrics, Edmonton, Canada

  • University Medical Center University Utrecht, Van Creveld kliniek, Utrecht, the Netherlands

  • St. Paul's Hospital, British Columbia Provincial Bleeding Disorders Program ‐ Adult Division, Vancouver, Canada

  • University of Chester, Department of Health & Social Care, Chester, United Kingdom

  • McMaster University, Department of Health Research Methods, Evidence and Impact, Department of Medicine, Hamilton, Canada

  • University of Washington, Department of Medicine, Seattle, WA

  • Bloodworks Northwest, Seattle, United States

  • University of California, Children's Hospital, Irvine and Center for Inherited Blood Disorders, Orange, United States

  • World Federation of Hemophilia, Montreal, Canada

  • National Hemophilia Foundation, New York, United States

  • Institute for Policy Advancement Ltd., Washington, USA

  • Christian Medical College, Department of Haematology, Vellore, India

  • The Decision Group, Amsterdam, the Netherlands

  • Erasmus University, Erasmus School of Accounting & Assurance, Rotterdam, the Netherlands

  • Sanquin Research, Center for Clinical Transfusion Research, Leiden, the Netherlands

  • Amsterdam UMC, University of Amsterdam, Emma Children's Hospital, Pediatric Hematology, Amsterdam, the Netherlands

Locations

  • Netherlands

  • Ireland

  • United Kingdom

  • Canada

  • United States

  • India

Companies

  • N/A

Study Components

Therapeutic Area

  • Blood/haematological Diseases

Disease

  • Hemophilia

Biomarkers

  • N/A

Drug/Treatment

  • N/A

Outcome

  • N/A


Study Design

  • Multinational

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • N/A