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M3017 2015 AHA : Health-related Quality of Life in Children with Marfan Syndrome

Researchers

Presenter

  • Danielle Hollenbeck-Pringle

Principal Investigators

  • Michelle S. Hamstra

  • Rosalind Korsin

  • Jami C Levine

  • Meghan K Mac Neal

  • Larry W Markham

  • Tonia Morrison

  • Kathleen Mussatto

  • Aaron K Olson

  • Mary Ella M. Pierpont

  • Mary J Roman

  • Felicia L Trachtenberg

  • Reed E Pyeritz

  • Elizabeth A Radojewski

  • Michelle Robinson

  • Elizabeth A Sparks

  • Kathryn Waitzman

  • Mingfen Xu

  • Ronald V Lacro

  • Victoria L Pemberton

  • Natl Heart

  • Teresa W Atz

  • Timothy J Bradley

  • Sylvia De Nobele

  • Georgeann K Groh

Medical Centers

  • Surgery, Washington Univ Sch of Med, St. Louis, MO

  • Seattle Children's, Seattle, WA

  • Ghent University Hospital, Ghent, Belgium

  • Vanderbilt University Medical Center, Nashville, TN

  • Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA

  • Weill Cornell Medical College, New York, NY

  • Icahn School of Medicine at Mount Sinai, New York, NY

  • Hospital for Sick Children, Toronto, ON, Canada

  • Duke Medcl Ctr, Durham, NC

  • University of Utah, Salt Lake City, UT

  • New England Research Institutes, Watertown, MA

  • Johns Hopkins, Baltimore, MD

  • and Blood Inst, Bethesda, MD

  • Univ of Michigan C. S. Mott Children's Hosp, Ann Arbor, MI

  • Children?s Hospitals and Clinics of Minnesota, St. Paul, MN

  • The Morgan Stanley Childrens Hospital, New York Presbyterian Hospital, New York, NY

  • Medcl Univ of South Carolina, Charleston, SC

  • Lurie Children's Hospital, Chicago, IL

  • Childrens Hospital of Philadelphia, Philadelphia, PA

  • Cincinnati Children's Hospital Medical Center, Cincinnati, OH

  • Boston Children's Hospital, Boston, MA

  • Children's Hospital Wisconsin, Milwaukee, WI

Locations

  • United States

  • Canada

  • Belgium

Companies

  • N/A

Study Components

Therapeutic Area

  • Genetic Disorder

  • Musculoskeletal

Disease

  • Marfan syndrome

Biomarkers

  • N/A

Drug/Treatment

  • Lorestan

  • Atenolol

Outcome

  • N/A

Study Design

  • N/A

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • Interim

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