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T1130 2016 AHA : International Calmodulinopathy Registry (ICaMR)

Researchers

Presenter

  • Carla Spazzolini

Principal Investigators

  • Connie Bezzina

  • Minoru Horie

  • Mette Nyegaard

  • Rolf Bennhagen

  • Robert M Hamilton

  • Arthur Wilde

  • Alfred L George

  • Michael J Ackerman

  • Peter J Schwartz

  • Juan Jimenez Jaimez

  • Naomasa Makita

  • David Tester

  • Susan P Etheridge

  • Britt-Maria Beckmann

  • John Papagiannis

  • Gregory R Webster

  • Najim Lahrouchi

Medical Centers

  • Univ of Pavia and IRCCS Istituto Auxologico Italiano, Rochester, MN

  • Shiga University of Medical Science, Otsu, Shiga, Japan

  • Academisch Medisch Centrum Univ van Amsterdam, Amsterdam, Netherlands

  • Academic Medical Center, University of Amsterdam, Amsterdam, Netherlands

  • Univeristy of Gothenburg, Gothenburg, Sweden.

  • Univ of Minnesota Hosp, Salt Lake City, UT

  • Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

  • Granada Univ Hosp, Granada Inst of Biohealth Res, Granada, Spain

  • Mayo Clinic, Rochester, MN

  • Aarhus Univt, Bygning, Denmark

  • Northwestern Feinberg School of Med., Chicago, IL

  • Univ. of Nagasaki, Nagasaki, Japan

  • Universita di Milano and IRCCS Istituto Auxologico Italiano, Milan, Italy

  • IRCCS, Istituto Auxologico Italiano, Milan, Italy

  • Ludwig-Maximilians-Universitaet (LMU), Munich, Germany

  • Childrens Mercy Hospital, Kansas City, MO

  • The Hosp for Sick Children and Res Inst, Toronto, ON, Canada

Locations

  • Canada

  • Japan

  • Italy

  • Netherlands

  • Spain

  • Germany

  • United States

  • Denmark

  • Sweden

Companies

  • N/A

Study Components

Therapeutic Area

  • Cardiovascular (CVS)

Disease

  • Catecholaminergic polymorphic ventricular tachycardia

  • Arrhythmia

  • Calmodulinopathy

  • Long QT syndrome

Biomarkers

  • N/A

Drug/Treatment

  • Mexitil

Outcome

  • N/A

Study Design

  • observational

Phase

  • NA

Study Id's

  • N/A

Sponsors

  • N/A

Result

  • Interim

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